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The benefit of registering will provide you with the opportunity to ask any question relating to our first human trials or on other research the Myelin Project supports.

If requested we introduce people with similar demyelinating conditions.

We continuously receive requests from people affected by demyelinating conditions (majority MS) to be included in future trials. Unfortunately we cannot support requests which do not provide us with contact details and relevant health information.

All information will be treated as confidential and will not be divulged to any other source.

RESEARCH

Are you diagnosed with any of the following conditions? Please tick relevant box

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 Multiple Sclerosis  Leukodystrophy  
Other demyelinating condition (
please specify)

GLOSSARY

If diagnosed MS, please give indication of your condition by ticking relevant box

YOUR STORY

BENIGN

Approx 10% of all MS sufferers. Characterised by one or two attacks after which the condition stabilises for a long period of time, generally in excess of 10 years

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RELAPSING-REMITTING

Approx. 40% of all MS sufferers. People often make complete recovery after a relapse or attack. Further relapses occur after which increasing disability remains. Relapses vary in severity and duration, existing symptoms may worsen and new ones may appear.

MESSAGE BOARD

SECONDARY PROGRESSIVE

Approx. 40% of all MS sufferers. It is estimated that half of the people with relapsing-remitting disease eventually stop entering the remission phases and their condition deteriorates continuously

PRIMARY PROGRESSIVE

Approx. 10% of all MS sufferers. There are no recognisable relapses or remission, but people show progressive disability whereby symptoms persist following their first attack.

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