LATEST NEWS...

YOUNG RUNNERS MILEATHON 3 Sept
Kids of age 14 and under took part in the Mile-athon in Glossop, Derbyshire to raise funds for the Myelin Project. Many families turned out to lend their support and cheer on the runners. CLICK HERE for a full report and pics.

EAVIS FAMILY HOST BACK-GARDEN FÊTE
Our thanks to Fran and Joe Eavis and their family and friends in Somerset. The Eavis' whose son, Alex is affected by MLD, recently held a fundraising fete in the back garden and raised about 700 pounds towards the upcoming MLD trials. CLICK HERE for a full report and pics

LONDON MARATHON RUNNERS NEEDED (3 Sept)
We are looking for runners for the 2007 Flora London Marathon to run on behalf of the Myelin Project. In the past we have had some fantastic participants in the event. Runners have to be aged 18 or over on the start date, April 22, 2007. We will supply sponsorship forms, T shirts, collection cans and writsbands and we will promote your efforts on the web site. Entry forms can be obtained from www.london-marathon.co.uk and must be submitted by Friday 6th October so if you are in good health and want to start training with a real target to help our families, now is the time.

12 YEAR OLD ZOE HODGES INSPIRED TO RAISE FUNDS 13 Aug
A young lady with a big heart from Royton Lancs, was inspired by seeing an article on the local TV news about Luke Carthy to organise an event with help from her family and friends in the local church. The show featured musical recitals, poetry readings, singing and stories along with a buffet meal. A total of £365.32 was raised. CLICK HERE to see some pics.

BOWLING NIGHT A GREAT SUCCESS 5 Aug
Thanks to all who took part in the Bowling Night with help from Galaxy 102 radio in Manchester (www.galaxymanchester.co.uk) and especially: Wes (Wes@breakfast show) and his co-horts in charity and radio mayhem: Irish Alan and Polly! Valuable funds were raised with the help of sponsorship from BMW and Mini Dealer, Williams Rochdale. Click here to see some pics of the event.

RUNNING TO MAKE A DIFFERENCE

£1000.00 was recently raised through the efforts of Amanda Dillon and her family and friends. Also, see what other help they have given to The Myelin Project.

Click here for details

MLD ENZYME REPLACEMENT TRIAL
Click Here for the latest information we have. You may have seen recent coverage on ITV (Manchester). Some information was received by us on 2.5.06 and we have posted this on the page.

FUNDRAISING HELP NEEDED
The Myelin Project is contributing towards the cost of funding some very expensive research programmes at the moment. We are desperately seeking additional funds so that we can keep these going and hopefully find a cure. 2006 has so far been a lean year for many charities and our receipts from donations have slipped. If you feel you could put together a fundraising event in your area we will offer you practical support with T shirts, collection cans, posters, wrist bands, web listings and local press.

It can be anything from a sponsored walk, a quiz night, a performance, a golf match, car/bike rallies, a garden party or any other ideas you may have. If you want to discuss an idea, call the head office of the British Trust. Tel: 01457 865639

PETITION TO PARLIAMENT
You can help make a difference today. We need more signatures! We've not met our goal of 1 million yet, but you can help: Click here for more details on how.

WRISTBANDS
Wristbands for awareness and fundraising are now available. See News page for more information.