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Information About Lorenzo's Oil Click here to view a letter from Augusto Odone
Lorenzo’s Oil is a combination of two fats extracted from olive oil and rapeseed oil, respectively. Can Lorenzo’s Oil help treat diseases other than ALD (adrenoleukodystrophy)? Lorenzo’s Oil is specific to ALD, does not repair myelin, and does not have any known effect on other demyelinating disorders. In ALD presymptomatic boys Lorenzo’s Oil often (but not always) prevents the onset of the disease by stopping the body from producing the very long chain fatty acids, whose buildup leads to demyelination. How do you get Lorenzo’s Oil? How much does it cost? In the U.S., Lorenzo’s Oil is currently only available to patients taking part in a clinical trial under the direction of Dr. Hugo Moser of the Kennedy Krieger Institute. He can be reached at (800) 873-3377. We are working with Dr. Moser and the FDA to obtain approval of Lorenzo's Oil as a drug, so that it can be widely available. The oil is jointly manufactured by Croda International of Britain and SHS International (Scientific Hospital Supply). SHS is also the worldwide distributor of the oil; for a list of international offices, please refer to their web site. SHS North America can be reached at (800) 365-7354. The oil costs $440 for 6 bottles; each bottle is 720 ml. A bottle generally provides a 10- to 14-day supply of the oil, depending on the individual’s prescribed intake. Some insurance companies will provide coverage for the oil, but others do not because it is still considered an experimental drug by the FDA. | |||||
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