SUPPORT GROUPS

MULTIPLE SCLEROSIS

MS BRIDGE SUPPORT GROUP
The MS Bridge Support Group has been established to provide support to MS Families in the Halton area and is supported by the MS Society.
For more information, please visit: http://msbridge.org

JOOLY'S JOINT
Julie Howell - MS Support Group.
MS families supporting each other.
Email: jooly@mswebpals.org

LEUKODYSTROPHIES - General

CLIMB
Climb is the National Information and Advice Centre for Metabolic Diseases in the UK providing world-wide support to over 6000 service users each year and supports 730 different metabolic diseases.
Email: lesley@climb.org.uk

ALD/AMN

ALD Life Support Group
Practical Information compiled by a single mum of 2 affected sons.

Sara Hunt,
ALD Life,
PO Box 43642,
London
SE22 0XR
Tel: 020 8473 7493
www.aldlife.org

AMN Support Group, UK
Chris Ogden, Co-ordinator
Email: chris@alexham.co.uk

KRABBES DISEASE

HUNTER'S HOPE
This is a USA support group with worldwide reach for those afflicted with Krabbe Leukodystrophy (Krabbe disease and other leukodystrophies)
P.O. Box 643
Orchard Park,
NY 14127
Tel.: (716) 667-1200
Fax: (716) 667-1212
Web site: www.huntershope.org

Message board sharing advice and support for victims of Krabbes disease
Web Site: www.krabbes.org

Web site sharing histories and demographic studies
Web Site: www.krabbes.com

PMD

PMD Support Group, UK
Peter Buckel, Co-ordinator
Email: pmdsupport@dsl.pipex.com

OTHER LINKS:

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MSRI - Raising Funds for MS Research
Andrew Monk, Co-ordinator
36 Ashdene Crescent
Harwood
Bolton
Lancs
BL2 3LW
Tel: 07939 165 688
Web: www.aboutms.co.uk
Email: msrif@aboutms.co.uk