As solicitor for the British Trust for the Myelin Project I am the longest serving Trustee member, it is my sad duty to officially announce the winding up of the Trust effectively from 31.08.2024.
 

The Trust was the brainchild of the late Augusto Odone who never wavered from his determination to achieve a cure for the devastating disease, Adrenoleukodystrophy, suffered by his son Lorenzo.
 

To all the former Trustees who gave of their time tirelessly over 30 years including Francesco Odone, who I had the privilege of working alongside with, we offer our deepest gratitude.
 

A sincere thank you to our loyal donors and those who bequeathed legacies over the years. You enabled the Trust to continuously fund novel research and clinical studies.
 

If you are looking to support another ALD charity, I highly recommend AlexTLC, based in London. They provide support and information to people affected by leukodystrophy, raise awareness and fund research.
 

Please visit their website here for more information.
https://alextlc.org

Lionel Fynn

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